Ingalo yabahlali abalupheleyo ngesifo sikaHuntington: Intuthuzelo kunye nenkxaso

Ukuqonda isifo sikaHuntington: Imiceli mngeni kunye neemfuno zabahlali abalupheleyo

Ukubaluleka kwezingalo ezingaqhelekanga kubantu abanesifo seHuntington

Iimpawu ekufuneka ziqwalaselwe xa ukhetha amathambo-manga abahlali abalupheleyo ngesifo seHuntington

Ukuphucula inkxaso kunye nokhuseleko kwi-Argoneir kuyilo lwabantu abanesifo sikaHuntington

Ukukhuthaza inkululeko kunye nomgangatho wobomi ngeendlela ezifanelekileyo zezinto ezichanekileyo zesifo seHuntington

Ukuqonda isifo sikaHuntington: Imiceli mngeni kunye neemfuno zabahlali abalupheleyo

Isifo sikaHuntington (HD) sisifo sokungakhathaleli ne-neurodegesive shrive echaphazela abantu kwizinto eziphakathi kwabo ukuba mdala. Kubahlali abalupheleyo abahlala ne-HD, imisebenzi yemihla ngemihla inokuhlala inzima ngenxa yemoto, ukuqonda, kunye nemvakalelo enxulumene nesi sifo. Njengoko imeko iqhubeka, ukugcina intuthuzelo kunye nenkxaso kwimisebenzi yemihla ngemihla, njengokuhlala, ibalulekile ekuphuculeni umgangatho wobomi babo. Kweli nqaku, siza kuqhuba ekubeniluleka kwengalo ze-Artich Elenzelwe abahlali abalupheleyo ngesifo sikaHuntington, izinto ekufuneka ziqwalaselwe xa ukhetha inkxaso nokhuseleko ngelixa ikhuthaza ukuzimela.

Ukubaluleka kwezingalo ezingaqhelekanga kubantu abanesifo seHuntington

Ukuhlala ixesha elide kunokuba ngumceli mngeni kubantu abanesifo sikaHuntington ngenxa yeempawu zemoto, kubandakanya ukuhamba nokuhamba ngokuzithandela, ukuqina kwemisipha, kunye nokungalingani. I-ERGEGIUR ARS ARS ARCHISEKILE Inemisebenzi kwiimfuno zezigulana ze-HD zinokuxhasa kakhulu impilo-ntle yazo iyonke. Eyona njongo iphambili kukubonelela ngentuthuzelo elungileyo, ukukhuthaza ukuphumla kunye nokunciphisa ukunciphisa iipateni zokuhamba eziphazamisayo. Ukuhlala okufanelekileyo kunokunciphisa ukungaphumli, ukunciphisa umngcipheko wokuwa, kunye nokonyusa ukuma kunye nolungelelwaniso ngokubanzi.

Iimpawu ekufuneka ziqwalaselwe xa ukhetha amathambo-manga abahlali abalupheleyo ngesifo seHuntington

1. I-Chushioing kunye ne-padding: Iingalo zabahlali abalupheleyo nge-HD kufuneka zibonakalise i-caushining ye-caushining kunye nepadding. Ezi zinto zibonelela ngenkxaso ebalulekileyo kunye nentuthuzelo eyandisiweyo ngokuthintela amanqaku oxinzelelo kunye nokunciphisa umngcipheko wezilonda zoxinzelelo. Ingcibi yememori kunye ne-foam yokulungisa i-pielicececececececececececezwe ukuba babumbe ubume bomzimba womntu ngamnye kwaye banike ithuthuzelo ebalaseleyo.

2. Iimpawu eziguqulweyo: Uhlengahlengiso olufanelekileyo lubalulekile ukuze nifezekise iimfuno ezahlukeneyo zabantu abane-HD. Iingalo ezinamatyala aguqukayo, indawo yokuhlala, kunye nezibhalo ezithe tyaba, ukuphetha kukhetho lwentuthuzelo kunye nokubonelela ngenkxaso ebalulekileyo kwiindawo ezahlukeneyo zomzimba ezichaphazeleka sisifo.

3. Uyilo lwe-Arrerere: Ubume kunye ne-Gad-Perney kunye ne-Gad-Gad-Pad-Gad-Pad-Deads inceda abantu ukuba badlulisele ubunzima babo xa behleli phantsi okanye benyuka besitulo. Ukongeza, iingalo zibonelela ngenkxaso ebalulekileyo ngexesha lokuphumla okanye ukuntywila ngokuzithandela, ukunciphisa umngcipheko wokulimala.

4. Umsebenzi wokuhlengahlengiswa: Indlela yokuhlala kwakhona inokuzuza kakhulu abahlali abalupheleyo ngesifo seHuntington. Ibavumela ukuba bahlengahlengise i-angle kasihlalo, babonelela ngeendlela zokuhlala ezihlaziyiweyo, ukukhuthaza ukujikeleza, kunye nokunciphisa uxinzelelo lwemisipha.

Ukuphucula inkxaso kunye nokhuseleko kwi-Argoneir kuyilo lwabantu abanesifo sikaHuntington

1. Ukuqina kunye nokuzinza: Izigulana ze-HD zinokufumana iintshukumo zequbuliso, ezingalawulekiyo ezinokukhokelela ekuweni ngengozi. Ke ngoko, iingalo zenzelwe umntu ngamnye nge-HD kufuneka azinze, zomelele, kwaye ziyakwazi ukumelana neentshukumo ze-sporadic, qinisekisa ukhuseleko lomsebenzisi kunye nokunciphisa umngcipheko wokwenzakala.

2. Iimpawu ze-anti-slip: kubandakanya izixhobo zokulwa i-antip kwisiseko se-Arher Sisikithi zinokuthintela isitulo esingafunekiyo size sinike uzinzo, ngakumbi xa umsebenzisi ekwazi ukumelana nesitulo.

3. Intamo exhasayo kunye nentloko Iingalo ezinentamo eguqukayo nenenkxaso kunye nentloko zinokunciphisa ukungalunganga, zivumela abasebenzisi ukuba bagcine indawo yokuhlala kunye ne-ergonomic yokuhlala.

Ukukhuthaza inkululeko kunye nomgangatho wobomi ngeendlela ezifanelekileyo zezinto ezichanekileyo zesifo seHuntington

Iingalo ezikhululekileyo nezixhasayo ezixhasa iimfuno ezithile zabahlali abalupheleyo ngesifo sikaHuntington sinokuphucula kakhulu ukuzimela ngokupheleleyo kunye nomgangatho wobomi bonke. Ngokunciphisa iintlungu, ukuqinisekisa ukuma komhlaba, kunye nokuphucula ukhuseleko, abantu abane-HD baya kufumana intuthuzelo kakhulu ngexesha lemisebenzi yemihla ngemihla, ebukele i-tv, okanye ukubandakanyeka kwizinto zokuzonwabisa. Ngaphezu koko, ukhetho lwengalotha elungileyo yezigulana ze-HD lunokuchaphazela kakuhle intlalo-ntle yabo yengqondo ngokunciphisa uxinzelelo kunye nokungaqhelekanga okunxulumene nesi sifo.

Ukuqukumbela, ukukhetha izixhobo zengalo ezifanelekileyo kubahlali abagulayo kuhlala nesifo sikaHuntington kubaluleke kakhulu ukuqinisekisa intuthuzelo, inkxaso kunye nokhuseleko. Ngokujonga imiceli mngeni ethile ebangelwe yi-HD, izitulo ezinjalo zingaphucula kakhulu impilo-ntle yabantu kwaye zinikezele ngentuthuzelo, ivumela imeko engcono yobomi kude kube sebusweni be-neurodegenege.